Never Give Up.......Motor Neurone Disease.

Tuesday, March 25, 2008

Sixty six years and still going







Well, here I am on a slightly overcast day in sunny New Plymouth. I am sitting propped up on the bed with my laptop on a tray deciding what to say... On the 24th I turned 66 ( wow, that's really old ) and was shouted out to an evening meal with my wife, son John and family.
The preceding two days had been interesting. We had to be at Wellington Airport by 7am so I could be processed and be ready to be loaded onto the plane first. We had left our car with a cousin of Jan's not far from the Airport to avoid having to pay long term parking fee's.
Having been dropped at the airport and with our suitcase checked in we made our way down to gate 12. A forklift with a special cage was waiting on the tarmac along with an isle chair to which I transfered to.
The family took me out the following nite to cellebrate my birthday and this t-shirt was given to me by the staff... we thought it was really great and caused much laughter. oh.. if only I could I said with a smile..

Saturday, March 01, 2008

Still here....

Hi folks, I’m still here. Just not as active as I have been.
Update on my condition… Still have the odd spot of breathing problem, you know, trying to get that extra lungful of air. And this can happen at any time of the day or night.
And because my backside is now so small ( muscle wastage ) my tailbone is the first thing I feel when I sit down.
Eating becoming more of a problem as there are now so many items of food that just won’t go past the back of my throat. Sticking a finger in to move the food around is not an option as I have a bad gag reflex. I find now that even having a cup of tea or coffee I sometimes have to make myself put the cup to my mouth and force myself to have a drink. It is all very time consuming. Thank goodness for the peg…