Never Give Up.......Motor Neurone Disease.

Sunday, October 22, 2006

No more stairs !!


Well, the big move is almost here. Yeah !! NO MORE STAIRS. They have been getting harder every day to get up. Going down is not so bad but have still had to watch where I put my feet. Today is Sunday 22nd October 2006 and the packers are coming in on Tuesday to pack us up and we move out on Wednesday.
We are going to rent for the moment but having said that will have to wait till the house we have found has been cleaned. So, in the meantime we are going to stay with our very dear friend Moira-Anne. She and I get on like a house on fire and that's the way it should be. Its almost like there is a rubber band connecting the two of us together. I have afternoon tea with her once a week and we talk about everything under the sun, MND included.
This is the first time I have put an entry into my blog for some time. I have been very tired lately and the cramping in right hand seems to be on the increase. Also have a little bit of cramp at odd times in both arms. Legs are also getting weaker.
Have bought myself a notebook/laptop and will be using that in the next month or so as we continue to look for a house to buy. I have two computers but they will both be in storage.
I continue to put my BEST foot forward and remain very positive....

Thursday, October 12, 2006

The BEST medicine in the world...

Laughter..

How do you define laughter...I don't think you can. But I will give it a go..

It is something that we humans do with such variation and with so many inflection's in the way that we produce this wonderful sound. It has been with us since the dawn of time. Early man must have laughed as much as we do and for all the same reasons.
To sit back and listen to a small child laugh and then to hear that sound start of an avalanche of laughter among other children and from that to hear yourself joining in is great. You know the old saying..'from the mouths of children'..
Laughter is not bound to any one race of people. It is not affected by age or language, race or colour. It covers all continents and is contagious in the extreme. There is no cure for laughter and I for one would be upset if there were.
It is with us from the time we learn to talk and remains our constant companion. And is with us when we most need a release valve and to those other time when the only course is to laugh.
Laughter can bring two people together and through the years strengthen the relationship that they have. It can bind many cultures into one and is the only verbal form of sound (that I know off ) that is universal in its understanding.

I have Motor Neurone Disease and I can laugh........CAN YOU !

Sunday, October 08, 2006

How life changes....

How life changes...So many things we take for granted.....

We evolved from the "Primeval Soup" of life on a new world which would be called Earth. . Fighting our way upwards along the Evolutionary road and becoming the dominant force over other species because we had a brain, legs and arms.
We developed a life style and social behaviour befitting our intelligence but in the long climb upwards and believing in our collective dominion over all forms of life, we blew it completely.....
Mankind is the only species on this planet that will kill or maim just for the sheer hell of it. BUT, having said that Nature does just as good a job. She will indiscriminately pick people out at random and regardless of race , age or creed give them something they didn't want.

DISEASES...In many shapes and forms. What does it matter if you live in a dirt village in Africa or India or in the frozen wastes of Alaska. On the high rolling plains of Mongolia or in a upper class apartment in any city on Earth.
You can be destitute or have more money than you know what to do with. No country is spared. Diseases have ravaged and pillaged our world for hundreds of years and medical science is still struggling, still coming to grips with what we have.
And that is where you and I come into the picture. You have been diagnosed with Motor Neurone Disease. The world as you know it comes to a grinding halt and everything crashes around you. It doesn't have too. ! We ask the question...."Why me, what have I done to deserve this". You are told that there is no cure. If you are a person who is capable of accepting a life changing condition but also ready to fight this disease and to make the most of it and knowing that you may be able to prolong your life , if only for a short time and by coming to terms with what you have and accepting the many forms of help that are available life will be a little bit easier for you.
Its all out there just waiting for us to say.."Yes, please help me".
But it all goes back to that "Primeval Soup" that we came from. In that seething cauldron of liquids, gases and magma, huge electrical storms that lasted for thousands of years and volcano's gushing forth there came, out of all of that a little known creature. Lets call it 'Man'.. As he grew upwards to what he is today he bought with him, out of that 'Primeval Soup' a whole host of other life forms, many of which may have laid dormant for thousands of years.. We will call them diseases.
In many parts of this highly developed and highly socialized world Motor Neurone Disease is still unknown. Many Doctor's are still only finding out what it is and many have still never heard of it. The human body is and shall remain a mystery. There is talk of 'cloning' a human being, God help us, that may or may not happen. But will it stop this eternal fight for survival from the effects of something like Motor Neurone Disease...
I DON"T THINK SO