Togetherness......

We are what we are and there is no way that we can change that fact of life. I am the essence of my parents and my children are the essence of Jan and I. It is the continuation of all families and of all generations to come.
And it is that closeness of family that holds us together, holds me upright and leads the way along this path of life. I have travelled along this path now for almost seventeen months and have watched, with some trepidation, as new family members are bought into this world.
What will they find as they progress through life in this world of ours. Will they become disillusioned. Will they become leaders in their communities or will they take whatever comes their way. It is a tough world today and getting tougher by the minute.
And what is it that drives the human race to keep going further forward in leaps and bounds. To make decisions that may or may not better Mans existence, to come up with new ways of improving, in general, the way that we, as a race, live.
It is the medical side of this story that we, you and I, depend on. To find out, if we can, what makes up our genetic background. Just where along my journey in the last 65 years did my genes do a back flip and decide that I as an individual should have an extra page to add to my ‘Book of life‘.
Was it in fact my genes or another factor that we still don’t know about. Will we in fact ever find out just what it is that makes some of us ’special’. And I use the expression ‘special’ in the loosest sense of the word. Of what use is it when you are ‘given’ a disability that will in the long run remove from you the right to live as you choose. A disability that brings with it hardships that you wouldn’t want to wish on anyone.
But it is also that hardship that brings us, you and I, closer together, to bond in a way that most people wouldn’t understand. We need the companionship of other people like us. It is through the Internet that we get the comradeship of friendship and in groups of volunteers that give of their time, their own brand of togetherness, fighting to give all people with our condition, a life free of the hardship I speak off.
A life that has quality, dignity, peace and love.

‘Quote’…When you get into a tight place and everything goes against you till it seems as though you cannot hang on a minute longer, never give up then, for that is just the place and time that the tide will turn.
‘Harriet Beecher Stowe’ (1811-1896)