Never Give Up.......Motor Neurone Disease.

Tuesday, May 29, 2007

Balance....

Stability…A large Ocean Liner is steaming through the waves of a storm at sea. The passengers onboard are content in the knowledge that the Liner is being controlled by commands from the brain of the Liner on the bridge. . Their world at this moment in time is secure.
They know that there is no danger of floundering as the liner has stabilisers and as long as they do the job that they been designed for then everyone can keep on enjoying themselves and life will go on as before. . BUT………
On the bridge a signal goes out via the circuits that run the length of the Liner to one of the stabilisers,. The unknown happens and there is a short circuit, the stabiliser drops slightly and the stability of the liner has been compromised.
People onboard notice that they have difficulty walking upright, that their balance is now uncertain. With the lost of stability there is also the fear of falling, of being no longer in control of their bodies.
Remove from any tall structure, like a skyscraper, the steel framework. What happens.. it will collapse. Remove from us the muscle and tendons of our legs. The scenario of the Liner and building is the same…
Stability is part of the framework of our bodies. Without it we become one of uncertain quality, a framework that has weakened to the extent that we know there is no turning back.
If you know of someone with a walking disability and you are reading this and you can correlate the above scenarios then you are halfway there to understanding just what I and thousands like me are going through every day.
You do not appreciate the ability to stand upright ( without support ) until it is taken from you. When that happens you realize the appendages that extend from your body, not only the legs but the arms as well, are going to get weaker and their mass ( muscle ) is going to disappear over time, then you know that the loss, any loss, of body function is going to affect not only the physical aspect of your relationship with this disease but the mental side of it as well.
Stability and balance… They are a marriage of nature.. Remove or damage one of them and you have a relationship that can not work.
ALS/MND is made up of many different components. The above are just two of them.


We are all different with this disease. Yet we are all the same, we are human…


Quote…..”Life’s challenges are not supposed to paralyze you, they’re supposed to help you discover who you are”
‘Bernice Johnson Reagon’

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